I Choose Life

 

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Rosie keeping an eye on what I’m writing!

On a  cinema trip with the kids recently, a trailer came on for Trainspotting 2. I sat there feeling quite nostalgic, as the film and actors seem to have grown up with me. I was in my early twenties when the first film came out, I was a struggling single mum, trying to make ends meet and had probably made various poor choices in my life. Obviously nothing as bad as the trainspotting crew! And now here I was, twenty years later,  watching the trailer, thinking how the characters have all grown up and become sensible, like me. I am now happily married with three kids and a mortgage living a sensible, forty plus year olds life. Ewen Mcgregor’s voice than echoed around the theatre “I choose life.” he said, and I wanted to stand up and shout “That’s like me too Ewen. I choose life.” The only difference being will life choose me?

That’s one of the things that I find difficult to cope with, when I ask myself, will I still be around in a few years? When the kids laugh and make comments about what they will all be like when they’re older, what jobs they’ll have, how many children etc. I smile and laugh too, but have that fleeting dark cloud that crosses my thoughts that says “Please let me be there. Please let me at their weddings and meet my grandchildren. Please let me see what beautiful strong women they will grow up to be because I desperately want life too.” So as I’ve said before, I do everything in my power not to think about it. I keep busy with things and people that make me smile and laugh. I don’t want to spend time worrying about it. I want to spend my time having fun. It doesn’t always pan out how you want it to though.

Recently I had a little sabbatical from social media, but ended up missing family and friends and mainly my eye cancer support group, so was back on within a month. One month. Within that month someone very to dear to lots of people in the eye cancer UK community had died and various others have had bad results back form the dreaded liver MRI. One person I consider a kind friend was one of them. I had thought I’d be catching up with happy memories and stories but was instead brought to a brutal halt that cancer is still very much part of my life. It had got him, would it get me? I wanted to scream. Why? He chooses life too and nobody seems to be listening! Not only is it bad enough to have to play Russian Roulette every six months, waiting for it to spread, but many people than have to fund the treatment themselves. Why? Because the cancer is rare, it’s terminal, so where would you put the funding? To prolong a middle aged woman’s life for a year or to pay for a lung transplant for a young child. It’s brutal, but that’s it. We know we aren’t top of the funding list however loud we scream “I choose life!!” So if anyone is ever looking for a charity to support, Ocumeluk is one that supports eye cancer and us.

And just a little aside to prove my point that ignorance is bliss, my lovely, almost 15 year old cat Rosie isn’t very well. She arrived when my 21 year old daughter was seven. She saw the arrival of the next two girls, who were often heavy handed with her, as only toddlers can be. Many a time I had to tell them to not carry her down the stairs in a head lock as poor Rosie couldn’t breathe and not to body slam her.  She never scratched or bit them. She then saw the arrival of a very large bouncy labradoodle, who she made quite clear too, she was boss, and managed three house moves without ever getting lost. We have now been told she’s on limited time and it’s just palliative care. We are all sad and devastated. Well all, apart from Rosie. She doesn’t know! She is ignorant to it and is more than happy living off fresh fish and chicken and being given fresh catnip daily and as many laps to sit on as she wants. Middle child told me that “it’s lovely as she can live the rest of her life like a princess.” And she can. An ignorant princess, which is the way to go. So I’m off to pop a bottle in the fridge so we can be ignorant princesses together.

Cheers xx

Cloud cuckoo land

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People who used to work with me will know, as I often said, I’m terrible at reflecting on my thoughts and feelings,  as I guess most people are. Who has the time to sit down and think through why you might be feeling upset or hurt?  I just ‘get over it,’ which of course may never sort a problem out. That is why I’ve been amazed at how reflective I have been over the past month. Really thinking about what makes me happy and what I want to do or change in my life, other than just coming off social media. This is where the book came in. Writing makes me happy and keeps me occupied. But don’t get me wrong, I am under no illusion it will ever be published or read by those other than who I pay, or who take pity on me, but it keeps me focused on positive things. It creates dreams, where I see my book published and in Waterstones and people telling me how wonderful it is. Dreams where I have an agent who negotiates a six-figure deal to have my book published and sold to a film company and it is then made into a box office hit. Dreams where I’m played by someone who most resembles me, probably Jennifer Anniston? Catherine zeta Jones? Cindy Crawford? Or an amalgamation of the three. Dreams where my leading man is…Sorry was I getting carried away?  It gives me a warm feeling that others may get from participating in a sporting event, the cyclist who dreams of being in the Tour de France (I wonder who?), playing golf with friends but dreaming of winning the open, selling one of your paintings, coming first in a baking competition (the dream of my youngest), finishing a marathon (tick. I’ve done that. Have I ever mentioned it?)  or spotting a rare bird on your many walks with your trusty binoculars. And that is what is important, having those dreams. Living your life but living your dreams too.  Life is too short to live with regrets of what you would have liked to have done or achieved. I want to give it my best shot now because you never know how long you have left. And just in case you’re worried, I’m not turning into a know it all guru on life because of my cancer experience, I have just realised that this hideous cancer experience has  helped me find my dream.  Where acupuncture and counselling failed, living in cloud cuckoo land has succeeded. Through doing this blog I have found something I enjoy doing as much as my husband loves lycra. If that’s even possible.

My other change is I am no longer answering messages about my appointments and check-ups. I felt I needed to take back some control over who I talk to about it. This may seem very odd when you are reading all about it on my blog, but that is written when I am ready. People worry and care and that causes them to pick up the phone to tell someone else what I may have just shared with them, which eventually comes back to me with phone calls and interrogations that I wasn’t ready to share openly and discuss. My blog is less personal and allows me more control. People then send lovely messages and e-mails rather than firing questions at me. All much more relaxing. And I love receiving them.

And now my update on yesterday’s eye appointment. It was all good. It fact my eye consultant described the tumour as ‘beautiful.’ Not sure that is an adjective I would use to describe it, but I understood her meaning. It was reacting beautifully to the radiotherapy. It is now very pale. No fluid near it. Sort of the same size, which I have come to expect from my tumour. I think of it as a steady sort of chap. One who doesn’t really like change or doing anything excitable. I can cope with that. I don’t want a crazy maverick living in my eye, causing all sorts of problems with his unpredictable conduct. So the same size is acceptable behaviour and I am on a four month reprieve -hooray!

Lastly – we have a teenager in the house again. Middle child has turned 13! Luckily there was no “God I hate you!” moments this morning, but I am well prepared for them when they come. The wine cupboard is fully stocked.

Have a good few months everyone.  I’m off to follow my dreams (or live in cloud cuckoo land, but both places are good places to be) as you never know you may be looking at the next JK Rowling who  looks a lot like Cindy Crawford  (No laughing please!). But don’t worry I’ll keep my feet firmly on the ground.

Cheers!

I’m not ‘brown bread’

 

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Just to reassure people I’m still here. Alive and kicking, maybe just a bit fatter after gorging on lots of delicious  food over the holidays.

Over the Christmas break while approaching the New Year I started to reflect a bit on my life, to think about what I wanted  to change.  How I wanted my year to pan out and what I wanted to achieve. I’m quite impulsive, I make a decision and don’t give an awful lot of thought to it, I just do it. Which is what happened when I thought, I don’t like Facebook anymore and  that is something I want to change for 2017.  I don’t want to ‘like’ my hundredth Christmas tree. Saying amen to a child with cancer on my timeline will not cure them and I don’t want to pass something on because then money will come my way. It won’t and you’re stupid to believe it will. So as I was turning into an intolerant, grumpy women I decided to say Goodbye to Facebook. But that was the problem, I should have said “Goodbye” instead I just turned it off, deleted the app  and continued on with my eating and drinking too much. Well it was Christmas – any excuse!

So I have had numerous texts and e-mails from friends asking if I was O.K? Had I ‘defriended’ them? No, I have sort of just defriended myself. Was I unwell? Not as far as I’m aware. And then there are the friends who you just contact via Facebook, who you have no other contact details for, not because you aren’t good friends but just because it’s easier to message through it. A few managed to contact me via this blog which was very resourceful.  I had planned  to not update my blog until next week, after my eye appointment. But sitting enjoying a glass of wine with my husband last night I was mentioning that a few people had contacted me and been worried, I felt bad as I should have said I was going and not just disappeared. He said that people would think I was ‘brown bread.’ What? I was confused. “You know, dead!” He obviously found it mildly amusing. As we were chatting about whether to go back onto Facebook to just say “goodbye” or not an e-mail  came through from a friend who I have known for almost 13 years, as our daughters share the same birthdays. I haven’t seen her for nearly 10  as she moved quite far away.  She was concerned that I had become unwell. It made me think that because people know me and I have had cancer, they are tainted with it too. Whereas I always used to think it was just me that worried every ache and pain was new growth, I now realise that others worry about that too. And I’m sorry for that. I really am. Just like I don’t like it when my youngest daughter writes stories about illness and losing someone, I don’t like it that people worry about me. I wish you had all just thought “where’s she gone? Unsociable b*tch!” I’m sorry you had to think of this ghastly disease that seems to permeate every interaction of my life. I want to reassure you all I am well. I have started jogging slowly after a hamstring injury and am all wrapped up in my two youngest daughters’ January birthdays. More cakes and bubbles? I hear you cry. Well if you insist.

My other big sharing news and a much larger New Years Resolution than leaving Facebook is something I only shared with a few people last year as I felt slightly embarrassed and not good enough. But I am sharing it now as I am determined to do it and finish it. My book! My blogs decreased as my book writing increased. I am 20.000 words into a teen fiction. My dramatic (dyslexic) middle daughter is my proof reader and she is “loving it!” Now if praise like that doesn’t make you go and pop a bottle in the fridge and celebrate, I don’t know what will!

Happy and healthy 2017 everybody!